Primary School Phase Aims

The aim of this study is to follow the development of children with Tuberous Sclerosis (aged 6-11 years) to better understand the condition and how it affects development, specifically their academic ability and outcomes. As the infant and preschool phases have now closed, we are planning to continue the study to assess development and behaviour in children with TSC and typically developing children, to understand changes over childhood and how earlier abilities predict outcomes (e.g. social communication, attention and cognitive ability).

Primary School Phase Assessments

The primary school phase will involve a range of assessments which we aim to be carried out in the family home and online. Recruitment is open, see the information sheet below and scan the QR code for the interest form!

Information sheet

Interest form:

Please see below for information on other ongoing studies led by our PhD student Cheyenne.

You are welcome to contact our team on edits-study@kcl.ac.uk if you have any questions!

man using silver iPad
man using silver iPad
Experiences of educational professionals engaging with students with tuberous sclerosis complex (TSC)

About

Impact of education on children with tuberous sclerosis complex (TSC): Voices from a primary school aged children and families

Scan below for the interest form:

Scan below for the interest form: